Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Zander's.

Zander was born at 31 weeks and demonstrated remarkable resilience from the start. We enjoyed ten months of relative health with Zander until he began experiencing severe vomiting and difficulty swallowing.  This led to significant weight loss and a diagnosis of failure to thrive. Zander was soon diagnosed with eosinophilic esophagitis (EOE).

In early 2018, Zander required a gastrostomy tube (g-tube) due to the inability to manage his condition through other means. Even with the g-tube and various dietary modifications, achieving remission remained elusive. Over the past seven years, we have discovered that Zander is allergic to all foods. Remission is only possible if he follows an elemental formula diet.

In the fall of 2019, Zander began experiencing severe left knee pain, which 

disrupted his sleep. By January 2020, he developed a cyclical fever and rash. This marked the beginning of our journey with autoinflammatory disease. Zander was also referred to the National Institutes of Health (NIH), where comprehensive genome testing revealed a homozygous NOD2 mutation. While this mutation is rare and its exact impact is uncertain, it is believed to influence his body's responses.

Every day, our families face uncertainty about their child's health, financial burdens, and isolation.

Every day, new families face an overwhelming diagnosis, unsure of where to turn. 

Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support for Zander's family and many more.

Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $25,000 for CC4C's mission.