Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Mikayla's.

At ten months old, it became clear that Mikayla's delayed developmental milestones were more than just her happy, laid-back personality. We began a journey in understanding Mikayla’s global delays ( therapy, MRI, genetic testing, and a slew of other specialty evaluations). Early findings on an MRI indicated a stroke. After 8 years of this answer for an underlying cause of her impairments, a follow up Neurology appointment in 2024, revealed Mikayla had not had a stroke.  

Mikayla is now undiagnosed. Our current journey involves helping Mikayla learn.  She requires individualized attention and appropriate accommodations for us to perceive what she comprehends and for her to demonstrate  her understanding. Communication, attention to task, visual spatial skills, and executive function skills are her greatest hurdles. We are committed to collaboratively piece together the complex puzzle of our wonderfully created child - No Matter What!

Every day, our families face uncertainty about their child's health, financial burdens, and isolation.

Every day, new families face an overwhelming diagnosis, unsure of where to turn. 

Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support for Mikayla's family and many more.

Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $25,000 for CC4C's mission.