Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Jonah's.

Jonah was diagnosed in utero with posterior urethral valves (PUV), which resulted in low amniotic fluid and subsequent kidney failure. Consequently, I was placed on bed rest for two months at NAMC. Jonah was born in critical condition and immediately transferred to DCMC, where he remained in the NICU for five months. He began peritoneal dialysis at three days old, but eventually required hemodialysis when peritoneal dialysis was no longer feasible.

At two years old, Jonah received a kidney transplant. In addition to his renal challenges, he has a G-button, a seizure disorder, mild autism, and significant orthopedic issues. To date, he has undergone a total of 25 surgeries. Despite his resilience and toughness, Jonah is a sensitive young boy who harbors fears about his mortality and worries that his time on earth may be limited. He is highly perceptive and often prefers the company of adults.

Every day, our families face uncertainty about their child's health, financial burdens, and isolation.

Every day, new families face an overwhelming diagnosis, unsure of where to turn. 

Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support for Jonah's family and many more.

Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $25,000 for CC4C's mission.