Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Denys's.

Denys was diagnosed prenatally with Agenesis of the Corpus Callosum. Upon birth, he experienced low blood sugar levels and was admitted to the ICU for 20 days. He exhibited global developmental delay, which initially went undiagnosed. At 18 months, he was diagnosed with hypothyroidism and was unable to sit, stand, or walk.

Around this time, we discovered the Anat Baniel Method and began sessions for Denys, which resulted in rapid and significant progress. When we moved to the United States in 2019, at the age of 2.5 years, Denys still could not stand up or sit down on his own, although he could stand and walk with assistance. At age 3, Denys was diagnosed with adrenal insufficiency and autism.

We initiated speech therapy, occupational therapy, and applied behavior analysis (ABA) therapy for him. Additionally, at age 3, Denys was diagnosed with a rare genetic disorder, Witteveen-Kolk syndrome, which appears to be the underlying cause of his various illnesses and developmental challenges.

Every day, our families face uncertainty about their child's health, financial burdens, and isolation.

Every day, new families face an overwhelming diagnosis, unsure of where to turn. 

Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support for Denys's family and many more.

Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $25,000 for CC4C's mission.