Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Clarrisa's.

Clarissa’s parents noticed that she was not developing normally around six months when she started missing notable milestones. She was referred to a specialist at Texas Children’s in Houston that was part of the Rett and Foxg1 NHS study. At nine months old they diagnosed her with Foxg1, and she started therapy. Since then, she has been a brave little fighter, constantly improving.

Clarissa’s condition affects her brain development. She is nonverbal,  developmentally delayed, and dependent on her parents for all daily activities. She has low muscle tone and uses a wheelchair. She takes medicine for epilepsy and also has a G-tube for most of her daily nutrition, but she does enjoy  food orally.

Clarissa’s sister is one of her biggest cheerleaders, and her family finds so much joy from spending time with her. She is a very happy girl who loves music, swimming, and spending time with her family and friends. Despite being nonverbal, she is very social and loves people.

Every day, our families face uncertainty about their child's health, financial burdens, and isolation.

Every day, new families face an overwhelming diagnosis, unsure of where to turn. 

Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support for Clarrisa's family and many more.

Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $25,000 for CC4C's mission.