Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Briley's.

Briley was diagnosed with Hypophosphatasia (HPP). When her brother Grayson was 16 months old, his baby teeth began falling out, prompting a search for answers. Suspecting HPP, a consultation with Dr. Whyte at Shriner’s Children Hospital in St. Louis confirmed the diagnosis. Four years later, Briley's diagnosis process was expedited through out-of-pocket genetic testing. 

Born prematurely at 35 weeks, she spent a week in the NICU for jaundice monitoring. Genetic testing during her NICU stay confirmed her HPP diagnosis. Despite expectations for a mild presentation, Briley developed craniosynostosis and chiari malformation, necessitating surgery before age 1. 

Advocacy and awareness of HPP guided her parents to seek prompt treatment, preventing potential complications. Briley and Grayson began Strensiq injections in 2016 for treatment, which have strengthened their bones and muscles, despite some side effects.

Every day, our families face uncertainty about their child's health, financial burdens, and isolation.

Every day, new families face an overwhelming diagnosis, unsure of where to turn. 

Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support for Briley's family and many more.

Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $25,000 for CC4C's mission.