Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Brendan's.

Brendan was brought to urgent care for what was believed to be a broken ankle. Over the course of six months, he saw several doctors, pediatricians, and orthopedic specialists for unexplained pain that wasn’t improving with everyday treatments. He had multiple X-rays, exams, bloodwork, and an MRI that resulted in referrals to specialists.

Finally, Brendan was diagnosed with Juvenile Idiopathic Arthritis-Psoriatic Arthritis & Enthesitis Arthritis. He started on medication injections weekly, and for the first six months after diagnosis he saw a physical therapist to help him regain lost muscle mass and tone. Every three months he gets blood work and sees the rheumatologist. Brendan has inflammation and pain in his feet, ankles and knees. If a flare-up happens, he has trouble walking and moving around. Besides this diagnosis Brendan also deals with allergies, asthma, alopecia, amblyopia, eczema, extra teeth, and frequent ear infections resulting in tubes.

Brendan loves playing the trumpet in band and playing volleyball.. He enjoys video games, anime, cosplaying and learning about space, forensic science and traveling. He also loves to eat desserts and blue bell ice cream.

Every day, our families face uncertainty about their child's health, financial burdens, and isolation.

Every day, new families face an overwhelming diagnosis, unsure of where to turn. 

Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support for Brendan's family and so many more.

Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $25,000 for CC4C's mission.