Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Bethany's.

Bethany was diagnosed with Spina Bifida in utero. Following her birth, she underwent closure surgery and required a VP shunt for hydrocephalus. By nine months, she was diagnosed with Chiari II malformation and strabismus, necessitating surgery for the latter. Bethany gradually stopped eating and was diagnosed with "poor feeding." Despite months of feeding therapy, her condition worsened, culminating in a hospitalization.

Bethany's feeding issues led to a lengthy, and traumatic journey toward obtaining a feeding tube. In addition to her feeding difficulties, Bethany has also been diagnosed with epilepsy. As she grows older, the number of hospitalizations, tests, imaging, procedures, therapies, and medications continue to increase, presenting new challenges regularly.

Despite these hardships, Bethany remains incredibly happy and resilient. Her enduring positive spirit is a blessing, though the path remains long, emotional, and arduous.

Every day, our families face uncertainty about their child's health, financial burdens, and isolation.

Every day, new families face an overwhelming diagnosis, unsure of where to turn. 

Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support for Bethany's family and many more.

Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $25,000 for CC4C's mission.