Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Bella's.

At 6 months old, Bella underwent corrective craniosynostosis surgery, followed by strabismus surgery at 14 months. Throughout this time, she experienced failure to thrive and began receiving early intervention services. Shortly after turning 2, she abruptly went into heart failure and was airlifted to UCSF, where she had previously undergone surgeries. She was diagnosed with pulmonary hypertension and, after 3 years of supplemental 24-hour oxygen and 15 daily medications aimed at restructuring her heart, she was cured.

Despite numerous medical appointments and diagnoses, we sought an explanation for her array of symptoms. Genetic testing at UCSF provided answers through genome and exome sequencing, diagnosing her with Arid 1B gene mutations.

In addition to her genetic disorder, Bella is on the autism spectrum, has anxiety, a history of kidney stones, and now faces the need for extensive orthodontic care, including two oral surgeries to correct the impacted teeth and severe underbite.

Every day, our families face uncertainty about their child's health, financial burdens, and isolation.

Every day, new families face an overwhelming diagnosis, unsure of where to turn. 

Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support for Bella's family and many more.

Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $25,000 for CC4C's mission.