Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Aurora's.

Aurora’s primary rare diagnosis of Lissencephaly was made when a brain MRI was conducted at five months of age, following concerns about delayed developmental milestones. Recognizing the complex medical and therapeutic needs her condition would require, her family relocated back to Austin from Interior Alaska, where she was born.

At age three, she received a second rare diagnosis of Lennox-Gastaut syndrome, identified through an EEG after her infantile spasms progressed into more complex seizure activity.

Although Aurora is nonverbal, developmentally delayed and uses a wheelchair, she is sociable and capable of forming strong friendships with individuals who make an extra effort to understand her world and spend time with her.

Every day, our families face uncertainty about their child's health, financial burdens, and isolation.

Every day, new families face an overwhelming diagnosis, unsure of where to turn. 

Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support for Aurora's family and many more.

Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $25,000 for CC4C's mission.