Our CC4C supporters help provide critical resources, hope, and community to families navigating the uncharted challenges of rare diseases like Anayah's.
Anayah's condition was a surprise at birth with a fractured hip, contractions, and limited mobility. In Pakistan, we traveled three hours to the only pediatric orthopedic specialist for casting, which she required for months starting at just two days old. While my wife and children remained in Pakistan, Anayah received daily physical therapy due to its affordability there.
Upon relocating to Texas, Anayah received treatment by specialists in Pediatrics, Neurology, Orthopedics, Speech Therapy, and PT. For two years, we traveled to Dallas for treatment but recently transitioned to Austin due to challenges with frequent traveling. She was previously diagnosed with Severe Motor Axonal Neuropathy, but recently moved from nerve-related to an undiagnosed muscular-condition.
Although Anayah is fully dependent on caregivers, now with her powered-wheelchair she has become independent and is always wanting to learn, explore, and participate in every activity. She has become an inspiration and joy to everyone that meets her.
Every day, our families face uncertainty about their child's health, financial burdens, and isolation.
Every day, new families face an overwhelming diagnosis, unsure of where to turn.
Your year-end gift ensures families won’t face this journey alone. With your help, we can continue offering life-changing programs, advocacy, and support like Anayah's family and many more.
Together, we can make 2025 a year of hope for families who need it most. Please consider a tax-deductible donation today and help us reach our goal of raising $25,000 for CC4C's mission.