Welcome to the first Rock n' Rare in Kendall Square event, an early evening of music & stories to inspire the next generation of rare disease rockstars! This event is for the families, CHILDREN (of any age!) and friends of those fighting on the frontlines for children like Mila and Rose - the researchers, clinicians, biotechs, rare disease foundations, politicians, lawyers, journalists and more.
Stories & Special Appearances by:
- Julia Vitarello - Mila's mom, Mila’s Miracle Foundation, N=1 Collaborative, EveryONE Medicines
- Casey McPherson - Rose's dad, To Cure a Rose Foundation, Everlum Bio, Chrysalis Genetics
- Tim Yu - Individualized Medicines rockstar, Boston Children's Hospital, HMS
- David Liu - Gene Editing rockstar, Broad Institute, Harvard & HHMI
- Dana Perella - kid star and Cookies4Cures founder
- Chloe Quinn - kid star and school rare disease voice
- Weston McPherson - kid star and rare disease sister
Music by Casey McPherson and his band AlphaRev
Organized by Mila's Miracle Foundation, To Cure a Rose Foundation, the Broad Institute and the Termeer Foundation.
